Director, Patient Advocacy, Inherited Metabolic Disorders (IMD)

Location: Remote
Reports To: Executive Director, Head of Patient Advocacy

About This Role:

The Director, Patient Advocacy, Inherited Metabolic Disorders (IMD) serves as the strategic leader responsible for shaping and advancing the U.S. patient advocacy strategy for IMD. This role will foster meaningful partnerships across the IMD community, ensuring patient and caregiver perspectives are integrated into company priorities, development programs, and business strategies. The Director will lead high-impact collaborations with advocacy organizations and drive the incorporation of community insights into cross-functional planning and decision-making across the product lifecycle. Through these efforts, the role will help strengthen trust, advance shared goals, and enhance outcomes for the IMD community.